Last night I went to a party with my friends. There were a lot of people I didn't know. I got asked the question "Why do you use a wheelchair when you can walk?" Or "Weren't you just in a wheelchair?". I don't mind people asking.
I answered "Well I can't walk long distances because I have a connective tissue disorder Ehlers Danlos Syndrome and all my joints dislocate" I then got asked by someone "What stops them coming out if you are just standing" I then answered "Nothing, but there it a greater chance if I am walking".
I am glad people ask because then they are informed about EDS and don't make the assumptions like, faker, lazy and all the other things that people think.
I understand it is weird I am in a wheelchair sometimes and others I am walking. But it is my life and to me it is NORMAL. Having an invisible illness is hard because no one can tell something is wrong with me as to why I use a wheelchair. So I know it looks weird... but it is my life and that is the reality of having an invisible illness.
Hugs,
Rachael
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