This blog post is more for women with EDS but it is also for parents of an EDS girl, husbands, boyfriends and partners of EDS girls. I don't know all the links to WHY EDS causes this. I just want to document what EDS patients experience.
Heavy, clotted periods: People with EDS have a lot of blood problems and the periods can be very, very heavy. Some need medications to control the bleeding.
The fatigue that comes along with EDS in most patients will get a lot worse at certain times of the month.
The cramps with EDS (possibly to do with ligaments etc?) can be very extreme. Some people with EDS have been hospitalized because of the severe pain.
People with EDS seem to hold fluid and around the menstruation period it gets worse.
Endometriosis is very common in EDS.
Poly-cystic Ovary Syndrome:
PCOS is a very common condition in EDS as well
The hormone that makes you flexible is released at this time and people with EDS have more dislocations around this time.
The pain increases as well
People with EDS have very irregular periods. I will bleed for 5 weeks and then stop for 3 days and it starts again
Blood Pressure Changes:
In patients with EDS and POTS the blood pressure tends to go down.
Because of the change in blood pressure people with EDS and POTS faint more.
When you are more flexible the muscles get weaker so around this time EDS patients are even weaker.
More prone to infections:
For some reason around this time our immune systems are worse and we get a lot of infections.
We tend to get more dehydrated around this time so we have to keep up with our fluids.
We tend to get migraines around this time. It can be much worse than usual
It can be extremely hard for us to concentrate on anything. It is like the lights are on but no body is home.
Intolerance to Heat:
Our heat intolerance can get worse. So periods and summer do not go well together.
Cold Hands and Feet:
Our hands and feet can be feet can be freezing while we are hot. This is a weird thing that I don't understand.
Anemia is caused by us bleeding so heavily and loosing so much blood and iron. This can make us very sick.
Our Muscle Spasms can get a lot worse. These can be very painful.
Itching all over:
Our skin can be very itchy- I am again unsure why.
Our skin can be more sensitive it can hurt more and split easily.
Hip Dislocations more severe and increased:
The hip dislocations get worse with the flexiblity.
I hope this helps.