Credit for these graphic goes to the Invisible Zebra Facebook page please like it and tell her Rachael's Journey sent you!
Fact 3:
This is one of the reason that we need awareness, without awareness there is no donations, without donations there is no research and without research there will never be a cure.
The treatments involve physio which doesn't work for everyone, different types of treatments for particular symptoms and medication but even with all of this the quality of life still isn't very good
Fact 4:
I don't have a lot to say about this fact because it covers it so well. I just want to say that a lot of parents feel bad, like its their fault that there child is sick but so long as you are there and supportive you are a good parent and all your child with an illness (any illness) needs is support.
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