Ehlers Danlos Awareness Month- Fact 18, 19,20

All the credit for these graphics goes to the Invisible Zebra Facebook page. Please go and like their page and tell them that I sent you.

Fact 18:

One of the main things that I struggle with is tears and strains, even after the joint has gone back in everything around it hurts just as much if not more. It is painful. I also have spasms and they can be very debilitating

Fact 19:

I also have very bad neck pain. I have to use a neck brace quite often as if I sit for a long period of time I am unable to hold my head up.

Fact 20:

I also have lower back pain! It hurts to sit and stand too much the only way that is somewhat comfortable is laying on my side. I also have sciatica which is a really horrible feeling!

My Awareness Efforts

I started to try to raise awareness for EDS as I wanted to help fellow EDS sufferers so I started to contact news programs, medical journals and magazines. It didn't take long before I felt like I was making progress.
The first thing I was featured in was Channel 10 News: Channel 10 :)
Next I was on a radio show :) Sadly I don't have the link for that avaliable.
Then I was in the Therapy Focus Magazine: Family Focus. It features a letter I had written to my class when I was bullied. You can read the story and the letter here: Therapy Focus - Rachael speaks out
Then I was in the Arthritis Today Magazine with a gorgeous girl Amber. I had a great experience doing this! Arthritis Today Magazine

I have a page where I sell awareness products:facebook.com/EDSAWARE
I also make awareness images for others with EDS for free. You can view some here: http://lindamadhatter.wordpress.com/2012/12/09/this-is-what-eds-looks-like/
If you would like one. Please email your image to: edsawarenessproducts@gmail.com

My dream is to raise even more awareness and to go to schools to talk about why you shouldn't bully people with illnesses and how they feel.

Hugs,
Rachael