I started to try to raise awareness for EDS as I wanted to help fellow EDS sufferers so I started to contact news programs, medical journals and magazines. It didn't take long before I felt like I was making progress.
The first thing I was featured in was Channel 10 News: Channel 10 :)
Next I was on a radio show :) Sadly I don't have the link for that avaliable.
Then I was in the Therapy Focus Magazine: Family Focus. It features a letter I had written to my class when I was bullied. You can read the story and the letter here: Therapy Focus - Rachael speaks out
Then I was in the Arthritis Today Magazine with a gorgeous girl Amber. I had a great experience doing this! Arthritis Today Magazine
I have a page where I sell awareness products:facebook.com/EDSAWARE
I also make awareness images for others with EDS for free. You can view some here: http://lindamadhatter.wordpress.com/2012/12/09/this-is-what-eds-looks-like/
If you would like one. Please email your image to: edsawarenessproducts@gmail.com
My dream is to raise even more awareness and to go to schools to talk about why you shouldn't bully people with illnesses and how they feel.
Hugs,
Rachael