Ehlers Danlos Syndrome Awareness Month- Fact 15 and 16

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Fact 13:

There really isn't a lot of treatments, and a lot of the treatments don't work effectively. One of the treatments is pain killers and that is not a good thing as they are not the best for the liver etc. I use a lot of different braces to prevent dislocations and I also use a wheelchair to prevent hip and knee dislocations

Fact 14:

I have POTS and it is a horrible condition it makes me faint often and I don't handle things like heat because of it. I have to use compression stockings because of blood pooling or else I have drop attacks

Fact 15:

Collagen effects so much more than people realise. There have been a lot of these problems in my family and in me. EDS is so much more than just hypermobility

Fact 16:

I had all of these problems, I was called a floppy baby and I took a long time to sit, stand, walk and talk

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Ehlers Danlos Syndrome Awareness Month 2015- Fact 11 and 12

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Fact 11:

I have dislocations and subluxations multiple times a day. While it is important to strengthen the joints physic does not work for everyone. I tried physio so many times for extended periods of time but it made me worse. While I think physio can work if it doesn't work for you thats okay. There are some great suggestions in this post. For me heavy lifting is a soap bottle when I was doing physio I couldn't use the weight so I had to use the soap bottle!! Haha!

Fact 12:

Prolapse has happened in my family a lot and I am not ashamed to say I have had this problem. It isn't a fun problem and their isn't an awful lot that they can do about it but it isn't something to be ashamed off as you can't help it.