Showing posts with label Chronic Fatigue Syndrome. Show all posts
Showing posts with label Chronic Fatigue Syndrome. Show all posts

Wednesday, 6 May 2015

Ehlers Danlos Syndrome Awareness Month 2015- Fact 5 and 6


I hope you are all enjoying these posts. It is fantastic to finally have some inspiration thanks to the Invisible Zebra Facebook Page who created all of the graphics. Please go and check out her page.

Fact 5

It is most common that you just get diagnosed by a clinical diagnosis which I view as a good thing because there is no procedures or pain etc. I think knowing that you would be diagnosed by a procedure would make people apprehensive. When vascular EDS is suspected they do a muscle biopsy or if they think you have a rare type of EDS






Fact 6:

Fatigue is so common in EDS. I have incredible fatigue all the time because my body is working so much harder than everyone elses. If I do too much I pay for days. Some days the fatigue and pain is so severe I can't get out of bed. It is very hard because there is nothing that I can do about it.  And I love the Spoon Theory here is a link to it: http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/



Thank you for reading. I hope that you enjoyed it. Please tell the Invisible Zebra that I sent you! Please share to raise EDS Awareness!

Tuesday, 18 December 2012

My Symptoms

I thought it may help people to know what my symptoms are I am sorry if this is a long list. I also think it will be good to have a list of all my symptoms for doctors and me.


  • Hypermobility
  • Stretchy Skin
  • Fragile Skin
  • Small harmless tumors at pressure points
  • Thin translucent skin
  • Joint dislocations
  • Joint subluxations
  • Flat feet
  • Cervical Instability
  • Muscle Weakness
  • Scoliosis
  • Easy Bruising 
  • Delayed Wound Healing
  • Soft Velvety skin
  • Cigarette Paper scars
  • Unexplained Stretch Marks
  • Mitral Valve Prolapse
  • Poor Balance
  • Absence Seizures
  • Severe Headaches
  • Migranes
  • High (mouth) Palate
  • Pain
  • High Resistance to Anesthetics 
  • High Sensitivity to Light
  • High Sensitivity to Noise
  • Near sightedness
  • Osteoarthritis
  • Low Muscle Tone
  • Lightheadedness
  • Fainting
  • Near-Fainting
  • Palpitations
  • Shortness of Breath
  • Weakness
  • Inability to sweat
  • Bloating
  • Vomiting
  • Abdominal Pain
  • Blurred Vision
  • Fatigue
  • Headaches
  • Sleep Disorder/s
  • Myofascial Pain
  • Dizziness
  • Tachycardia
  • Clamminess
  • Blood Pooling
  • Intolerance to Heat
  • Low Blood Pressure when standing
  • Cognitive Impairment
  • Cold Hands and Feet
  • Chills
  • Numbness and Tingling
  • Weightloss
  • Nausea
  • Paleness of the skin
  • Thin brittle nails and hair
  • Clumsiness
  • Burning Pain
  • Changes in Skin Temperature
  • Fevers
  • Sore Throat
  • Swollen Lymph Nodes
I think that is all!

Hugs,
Rachael