Sorry I have been absent

Hi everyone,

I know I usually write a lot more often. I have had tonsilitis and haven't been getting much sleep either. I have also had a horrid headache so I have been unable to concentrate to write posts. The headache has eased today.

I want to post about why some days I can do 2, 3,4 posts a day and others I can't do any. Some days I can go to school and others I can't get out of bed.

EDS is unpredictable some days the pain is out of control and you cannot concentrate or walk, some days you get a migraine and can't concentrate, some days all I can do is sleep. Take this for example. On the school camp in 2012 I was having a bad week and all I wanted to do was sleep. I would sleep in the car, it was a time where I was moaning and crying in my sleep. One day I slept for an hour and a half in the car, then laid down and slept for 4 hrs. I was then woken for dinner. I barely ate anything then I went back to my room while every one did activities I took a panadol forte and didn't get up expect for more pain killers, until 7am. We then had the long car ride home and I slept almost the whole way.

So if someone with EDS cancels plans, remember this, it is not there fault, EDS is unpredictable.

Hugs,

Rachael