On Tuesday I had appointments at PMH. They still have no answers as to why I am dropping. They suggested it was psychological but I don't think so as a boy with EDS is doing the same thing, we didn't know each other until after we started falling. They are testing me for Glandular Fever as I am showing the symptoms of it again. We are considering the idea that I may have Mitochondrial Disease thus far we are not sure what type if I do have it. My doctor said "You are the unluckiest girl on the planet" lol sometimes it feels that way.
Wednesday:
(Today)
I had 13 falls, which is a record for me. One fall I had a glass in my hand. I am so thankful that it didn't cut me! I had a lot of dislocations and a lot of pain. I slept in the sick bay a lot today, I haven't been sleeping much at night. It is 12:40am here now. I then went to my GP and she prescribed me Morphine for night time when the pain is bad. I took it at 9pm and it made no difference to my pain. That is really hard because I was hoping for some relief from this pain.
Next week I will have an ultrasound on my shoulder.
On a good night. I got a Zebra Onesie :D
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| Me in my zebra onesie |
I love your onesie! (even though I think you already have a zebra overload)
ReplyDeleteSam xo
Hehe thanks Sam xox
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